I became a Natalie Merchant fan in the 1980’s, the first time I heard a 10,000 Maniacs song, and I have loved her ever since.
I can’t count the memories of mine that include the soundtrack of Natalie Merchant.
Natalie’s voice is hauntingly beautiful and her insightful, powerful lyrics reveal a compassionate soul and determined activist.
Recently I searched up Natalie Merchant on Spotify to make a Natalie Merchant playlist, (since all my 10,000 Maniacs and Natalie Merchant albums are on CDs,) and I noticed she has a collection of tracks. Wonder: Introducing Natalie Merchant, released in correlation with the film Wonder – which was inspired by Natalie’s song, Wonder.
Natalie’s song Wonder was released on her album TigerLily in 1995 and it inspired RJ Palacio’s 2012 best-selling young adult novel, Wonder.
The film Wonder was released in November 2017 and stars Julia Roberts, Owen Wilson, Jacob Tremblay, and Mandy Patinkin.
I saw the film along with my daughter’s class for a school field trip. It was beautiful. I was so grateful my daughter and her classmates had the chance to experience such a touching and inspiring story.
Wonder and the EB Connection
Over the years, Natalie’s song, Wonder, has become a treasured anthem for the special needs community.
In this emotional video, Natalie explains that when she wrote Wonder she didn’t know who it was about until she met this special set of twins with Epidermolysis bullosa (EB). She became close friends with the girls, befriending and mentoring them for years until their death.
If you want a moment of inspiration and to meet some incredible people, watch this video with Natalie.
And if you have never heard the song Wonder before, you really must listen to it. It is indescribable.
Personally, I had only heard of EB a few times on the news and didn’t know much at all about it until I met my dear friend Connie Peters who, along with her oldest daughter, lives with this disease. Thankfully, Connie and her daughter have a less severe type of the disease that is not life threatening.
Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.”
Epidermolysis Bullosa (ep-i-der-mo-lie-sis bu-low-suh), or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30.
Ella, is 10-year-old little girl that inspired the mission of Tag with Ella which supports families with Epidermolysis Bullosa (EB).
Click here to find out how you can help…
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Just so you know, this post is not part of any partnership with the movie, book, record company, or Debra.org, but Debra.org did give us permission to use images from their website.
Written by Janice Croze, co-founder of 5 Minutes for Mom
Talk with me: @5minutesformom and Facebook.com/5minutesformom
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