Comments on: To Post or Not To Post… http://www.5minutesformom.com/14568/to-post-or-not-to-post/?utm_source=rss&utm_medium=rss&utm_campaign=to-post-or-not-to-post Mon, 21 May 2012 06:13:27 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Diagnosis: Stereotypy http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1867826 Diagnosis: Stereotypy Fri, 29 Jan 2010 09:05:34 +0000 http://www.5minutesformom.com/?p=14568#comment-1867826 [...] fall, I noticed Olivia was experiencing what I thought were facial tics. Our doctor sent us to a Pediatrician, who ordered an EEG, which led to our appointment today with [...] [...] fall, I noticed Olivia was experiencing what I thought were facial tics. Our doctor sent us to a Pediatrician, who ordered an EEG, which led to our appointment today with [...]

]]> By: Julie Smith http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1860374 Julie Smith Sun, 17 Jan 2010 19:20:24 +0000 http://www.5minutesformom.com/?p=14568#comment-1860374 I think that writing about these things is important as a way to vent .. as a way to share and inform others who may be having similar problems .. and, I think even more importantly, as a way to bring your thoughts, feelings and fears into some state of cohesiveness. Our instincts as mothers are rarely wrong. I know that for two years I kept saying that something was wrong with my son. He had lost his words, he had horrible terrible awful violent tantrums, and he honestly didn't 'get' the concept of consequences. My friends, my doctor ... all of them kept saying things like, "He's just a boy; they're more difficult" or "Give it time; not all children progress at the same rate". When he was almost four, I was FINALLY able to get a workup and psych consult, where he was diagnosed with PDD/NOS, ODD, and ADHD. I was also told that he would never be mainstreamed, etc. But since I had already self-diagnosed (at least the PDD part), I had started my own form of therapy with him. He's nine years old now, in a wonderful charter school in regular classes with lots of friends (which I never thought he'd be able to have) and A's and B's on his report card. I didn't put him in school until he was 7, but he's right up with everyone else in his third grade class; actually, better than most. It's been a long, very difficult road, but I didn't give up and I kept myself open to other forms of treatment (vitamin therapy, gluten-free, etc.) and found a drug-free combination that worked for him. I will keep you, your family, and, most of all, your gorgeous Olivia in my thoughts and prayers. I think that writing about these things is important as a way to vent .. as a way to share and inform others who may be having similar problems .. and, I think even more importantly, as a way to bring your thoughts, feelings and fears into some state of cohesiveness.
Our instincts as mothers are rarely wrong. I know that for two years I kept saying that something was wrong with my son. He had lost his words, he had horrible terrible awful violent tantrums, and he honestly didn’t ‘get’ the concept of consequences. My friends, my doctor … all of them kept saying things like, “He’s just a boy; they’re more difficult” or “Give it time; not all children progress at the same rate”. When he was almost four, I was FINALLY able to get a workup and psych consult, where he was diagnosed with PDD/NOS, ODD, and ADHD. I was also told that he would never be mainstreamed, etc. But since I had already self-diagnosed (at least the PDD part), I had started my own form of therapy with him. He’s nine years old now, in a wonderful charter school in regular classes with lots of friends (which I never thought he’d be able to have) and A’s and B’s on his report card. I didn’t put him in school until he was 7, but he’s right up with everyone else in his third grade class; actually, better than most. It’s been a long, very difficult road, but I didn’t give up and I kept myself open to other forms of treatment (vitamin therapy, gluten-free, etc.) and found a drug-free combination that worked for him.
I will keep you, your family, and, most of all, your gorgeous Olivia in my thoughts and prayers.

]]> By: Linda M. http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1860373 Linda M. Sun, 17 Jan 2010 19:19:38 +0000 http://www.5minutesformom.com/?p=14568#comment-1860373 I will absolutely pray for your precious daughter. You can absolutely ask for strength & our prayers. How wonderful it is that we have this outlet for our feelings & views. I so enjoy all of the 5 minutes blogs. I feel like I have a friend, when I don't even see anyone day after day. I have found myself a disabled woman at 55 & had to give up my home & live with my grown sons. I hate that I put a strain on their families.They are wonderful enough to welcome me in their homes & I can't honestly say that I would've been thrilled to have my mother-in-law in my home as a young married couple. Even my own Mom would've been a strain. I am fortunate enough to have both of my parnets living at my age & I spend as much time as I can with them at their house. Well, I went on enough to qualify me as a blogger of feelings, didn't I?Thank you, thank you for reading this & thank you for being there every day for me & I'm sure so many others. Your families are in my daily prayers. I will absolutely pray for your precious daughter. You can absolutely ask for strength & our prayers. How wonderful it is that we have this outlet for our feelings & views. I so enjoy all of the 5 minutes blogs. I feel like I have a friend, when I don’t even see anyone day after day. I have found myself a disabled woman at 55 & had to give up my home & live with my grown sons. I hate that I put a strain on their families.They are wonderful enough to welcome me in their homes & I can’t honestly say that I would’ve been thrilled to have my mother-in-law in my home as a young married couple. Even my own Mom would’ve been a strain. I am fortunate enough to have both of my parnets living at my age & I spend as much time as I can with them at their house.
Well, I went on enough to qualify me as a blogger of feelings, didn’t I?Thank you, thank you for reading this & thank you for being there every day for me & I’m sure so many others. Your families are in my daily prayers.

]]> By: trishden http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858710 trishden Fri, 15 Jan 2010 04:53:35 +0000 http://www.5minutesformom.com/?p=14568#comment-1858710 Not to be a butinsky, but did you ever consider Lyme disease? My son who has been socially introverted for most of his life and complained in his late teens of having social phobias and anxiety was finally diagnosed with Lyme after taking him to a LLMD...you can't go to a infectious disease doctor as they are in the pockets of Big pharma and think Lyme is no big deal and easy to diagnose and treat. also with my Lyme I had many facial ticks, mostly under my eyes. Just a thought if you need more info the best site is http://www.lymenet.org There you can make a request for a doctor in your area...and yes it is in all 50 states. Not to be a butinsky, but did you ever consider Lyme disease? My son who has been socially introverted for most of his life and complained in his late teens of having social phobias and anxiety was finally diagnosed with Lyme after taking him to a LLMD…you can’t go to a infectious disease doctor as they are in the pockets of Big pharma and think Lyme is no big deal and easy to diagnose and treat. also with my Lyme I had many facial ticks, mostly under my eyes. Just a thought if you need more info the best site is http://www.lymenet.org There you can make a request for a doctor in your area…and yes it is in all 50 states.

]]> By: Dawn http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858693 Dawn Fri, 15 Jan 2010 04:00:40 +0000 http://www.5minutesformom.com/?p=14568#comment-1858693 Janice, I'm praying for you and Olivia now. I hope the medical specialists can offer you something conclusive very soon! Janice, I’m praying for you and Olivia now. I hope the medical specialists can offer you something conclusive very soon!

]]> By: If I tell you I am depressed, does it make you think less of me? http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858345 If I tell you I am depressed, does it make you think less of me? Thu, 14 Jan 2010 23:14:43 +0000 http://www.5minutesformom.com/?p=14568#comment-1858345 [...] a hard time staying calm when my ADHD, ODD son starts acting out. I will feel waves of panic as my daughter has fits of tics. SO you ask — are you TAKING anything for all of this [...] [...] a hard time staying calm when my ADHD, ODD son starts acting out. I will feel waves of panic as my daughter has fits of tics. SO you ask — are you TAKING anything for all of this [...]

]]> By: MommyNamedApril http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858156 MommyNamedApril Thu, 14 Jan 2010 21:40:31 +0000 http://www.5minutesformom.com/?p=14568#comment-1858156 i do post about my children... i'm not sure what the line is, but i hope i'll recognize it if/when the time comes. keeping your babies in my thoughts ((hugs)) i do post about my children… i’m not sure what the line is, but i hope i’ll recognize it if/when the time comes.

keeping your babies in my thoughts ((hugs))

]]> By: oh amanda http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858150 oh amanda Thu, 14 Jan 2010 21:03:33 +0000 http://www.5minutesformom.com/?p=14568#comment-1858150 I just think the internet is one big prayer chain! And if I had something I wanted people to pray about, I WOULD share it online. The more people praying the better! But you have to do what's best for you and your emotions and your family, of course! Just know I'm praying for sweet Olivia! a I just think the internet is one big prayer chain! And if I had something I wanted people to pray about, I WOULD share it online. The more people praying the better!

But you have to do what’s best for you and your emotions and your family, of course! Just know I’m praying for sweet Olivia!

a

]]> By: Kristine http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858126 Kristine Thu, 14 Jan 2010 20:38:38 +0000 http://www.5minutesformom.com/?p=14568#comment-1858126 I too have struggled with how much to share about my son Noah, who has similar issues as your son. Ultimately I have decided that there is really no better way for him to see how much we have tried to do to help him. I don't think he could ever read it and not see how much we love him and have tried to make his life better. I've been blogging for 4 1/2 years and having our struggles with him documented has been very helpful to me to see how far we really have come. So often it feels like we haven't made any progress, because we get bogged down in the day to day struggles. My blog allows me to look back over the last 4 1/2 years and see how far we really have come. Do I still worry that some day he might be upset that I wrote about him? Yes. I imagine it will be just one of many things about me that he finds horrible during adolescence. My plan is that when he gets older and is ready I will read it with him so he can ask me questions and really understand what I've shared. The only tricky part of this is to make sure I do that before he finds it on his own. More concerning to me right now is that my parents and brother have started reading my blog. I'm feeling uncomfortable really letting it all out on there now because of them reading. I'm suddenly feeling very vulnerable in a way I never have before while blogging. And that sucks because blogging is a huge form of therapy for me. I too have struggled with how much to share about my son Noah, who has similar issues as your son.

Ultimately I have decided that there is really no better way for him to see how much we have tried to do to help him. I don’t think he could ever read it and not see how much we love him and have tried to make his life better.

I’ve been blogging for 4 1/2 years and having our struggles with him documented has been very helpful to me to see how far we really have come. So often it feels like we haven’t made any progress, because we get bogged down in the day to day struggles. My blog allows me to look back over the last 4 1/2 years and see how far we really have come.

Do I still worry that some day he might be upset that I wrote about him? Yes. I imagine it will be just one of many things about me that he finds horrible during adolescence. My plan is that when he gets older and is ready I will read it with him so he can ask me questions and really understand what I’ve shared. The only tricky part of this is to make sure I do that before he finds it on his own.

More concerning to me right now is that my parents and brother have started reading my blog. I’m feeling uncomfortable really letting it all out on there now because of them reading. I’m suddenly feeling very vulnerable in a way I never have before while blogging. And that sucks because blogging is a huge form of therapy for me.

]]> By: Deanne http://www.5minutesformom.com/14568/to-post-or-not-to-post/#comment-1858121 Deanne Thu, 14 Jan 2010 20:17:09 +0000 http://www.5minutesformom.com/?p=14568#comment-1858121 My heart aches for you. When there is something wrong with your children it's 10 times worse than if it was something wrong with yourself. I herd a quote and believe it to be so true..... "A mom can only be as happy as her saddest child." Isn't that the truth. I think it's important to share with other parents...Noone knows the love mothers have for the kids, except other moms. We can relate to each other in a special way. Praying for your sweet girl..... My heart aches for you. When there is something wrong with your children it’s 10 times worse than if it was something wrong with yourself. I herd a quote and believe it to be so true…..
“A mom can only be as happy as her saddest child.”
Isn’t that the truth. I think it’s important to share with other parents…Noone knows the love mothers have for the kids, except other moms. We can relate to each other in a special way.
Praying for your sweet girl…..

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